Achromatopsie Selbsthilfegruppe e. V.

SYMPTOMS OF ACHROMATOPSIA ARE:

  • complete color blindness
  • low vision (<= 10%)
  • extreme light sensitivity
  • Nystagmus

THE SELF-HELP, SUPPORT GROUP

  • supports affected persons and relatives
  • enables exchange of experience
  • informs about aids and promotion
  • gives tips for everyday life
  • is in dialogue with doctors and opticians
  • observes research and science
  • is non-profit.
Logo Achromatopsie Selbsthilfe e.V.

Contact

Achromatopsie Selbsthilfegruppe e. V. 
Hans-Werner Merkelbach 
Graf-Recke-Str. 160 
D-40237 Düsseldorf 

Tel. + 49 211 26 17 72 95
kontakt@achromatopsie.de
www.achromatopsie.de


Products

Category: Aids to daily living

Achromatopsie SHG - colorADD Logo

colorADD
colorADD® helps color-blind people to find their way in a color-coded world. The symbols may be used to mark many things so that color-blind people will be able to recognize or name the colors. Here you will finde examples of use:

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Photo of an exhibition stand of the association at an exhibition

Contact during the fair
If you have any questions about the visual impairment achromatopsia or about our self-help group, please contact us during SightCity. Check our WEBsite to see if the booth is currently occupied. Or arrange a visit.

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Category: Associations, institutions, organisations, societies

Tabular representation of achromatopsia symptoms

Symptomes and handicap
In addition to total color blindness, extreme sensitivity to light and visual impairment (visual <= 0.1) are the handicaps of people with achromatopsia. Because of the strong sensitivity to glare, the congenital visual impairment is also called dayblindness. Achromatopsia is a very rare disease.

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Achromatopsia - Life Without Color; Movie title; gray image of an eye, the title is in the eye

Our film
The film “ACHROMATOPSIE – LIFE WITHOUT COLORS” informs about the very rare visual impairment. Affected people report on problems and possibilities in everyday life. A doctor talks about diagnosis and support.
Call the movie on YOUTUBE at:

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Schematic representation of the eye structure and how the therapy begins

CNGA3 Gene Therapy Study
At the Centre for Ophthalmology, University Hospital Tübingen, gene therapy in achromatopsia is investigated. After a phase 1 trial has proven safety and efficacy in adults, now children will also be treated. Further information:

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Note
The exhibitor is responsible for the content presented on the website of the organiser as well as on the website of the respective exhibitor. The organiser assumes no responsibility or liability for this.