Achromatopsie Selbsthilfegruppe e.V.

  • L1.18R

SYMPTOMS OF ACHROMATOPSIA ARE: – complete color blindness – low vision (<= 10%) - extreme light sensitivity - Nystagmus THE SELF-HELP, SUPPORT GROUP - supports affected persons and relatives - enables exchange of experience - informs about aids and promotion - gives tips for everyday life

Contact details

Achromatopsie Selbsthilfegruppe e.V.
Achromatopsie Selbsthilfegruppe e.V.

Hans-Werner Merkelbach

Graf-Recke-Str. 160

40237 Düsseldorf


40237 Düsseldorf
Germany

Phone:

tel:+49 211 26177295
kontakt@achromatopsie.de
https://www.achromatopsie.de

Symptomes and handicap

In addition to total color blindness, extreme sensitivity to light and visual impairment (visual <= 0.1) are the handicaps of people with achromatopsia. Because of the strong sensitivity to glare, the congenital visual impairment is also called dayblindness. Achromatopsia is a very rare disease.

SightCity-Forum 2022

20 May 2022 from 12:00 to 12:30 SightCity-Forum Lecture: „Achromatopsia – complete color blindness Diagnosis, symptoms and aids in this rare, congenital visual impairment“

Our film

The film “ACHROMATOPSIE – LIFE WITHOUT COLORS” informs about the very rare visual impairment. Affected people report on problems and possibilities in everyday life. A doctor talks about diagnosis and support. Call the movie on YOUTUBE at: https://youtu.be/_GFcbwMk9FI

CNGA3 Gene Therapy Study

At the Centre for Ophthalmology, University Hospital Tübingen, gene therapy in achromatopsia is investigated. After a phase 1 trial has proven safety and efficacy in adults, now children will also be treated. Further information: https://www.achromatopsie.de/achromatopsie/gibt-es-eine-therapie/

colorADD

colorADD® helps color-blind people to find their way in a color-coded world. The symbols may be used to mark many things so that color-blind people will be able to recognize or name the colors. Here you will finde examples of use: https://www.achromatopsie.de/materiallinks/coloradd/

Achromatopsia

Achromatopsia is a very rare eye disease. The image information of the cones on the retina is not transmitted to the brain. Therefore, no colors can be recognized. Vision is severely impaired.

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