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PRO RETINA is a nationwide self-help organization with over 7000 members,by and for people with retinal diseases. Founded in 1977 by affected individuals and their families, PRO RETINA serves as the bridge between patients,politics, society&doctors.
PRO RETINA Deutschland e. V., Selbsthilfevereinigung von Menschen mit Netzhautdegenerationen
Mozartstr. 4-10
53115 Bonn
Germany
Phone:
The department coordinates all work related to diagnosis and therapy at PRO RETINA. The department’s staff edit articles on medical topics in the member magazine Retina aktuell. They write texts for PRO RETINA’s informational materials and maintain c
The optimal digital project is currently training more advisors on various digital topics so that our members can also participate in life in this field.
PRO RETINA is a nationwide self-help organization with over 7000 members,by and for people with retinal diseases. Founded in 1977 by affected individuals and their families, PRO RETINA serves as the bridge between patients,politics, society&doctors.
The free patient registry of PRO RETINA has been collecting data from people with retinal diseases since 2016, serving as a link between patients and researchers.
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Trained affected individuals advise other affected individuals under one roof with medical professionals. All advisors are themselves affected and therefore understand the questions and problems of those seeking advice from personal experience.
Throughout Germany, more than 150 volunteer advisors provide support to other affected individuals and their families on all questions related to diagnosis and managing the condition. In the advisory finder, you can find the right contact person.
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